When I was born in 1970 with a rare genetic disorder called spondyloepiphyseal dysplasia congenita (SED) medical science wasn't what it is today and my mum and dad were treated terribly by the medical profession.
I get those fleeting beautiful moments of inner peace and stillness - and then the other 23 hours and 45 minutes of the day I'm a human trying to make it through in this world.
